
Posted on March 8, 2010
South Bend Special Needs Photography | Bryce’s Disorder
I confess, I have not been a very good blogger lately. I am sorry, but I promise it’s been for a good cause. It’s all Bryce’s fault. Well, not really, but it is mainly because every time I go to blog, I want to blog about him and I haven’t been able to pour my heart out quite yet. We knew about a year ago that there was something not quite right with him, I was concerned but passed it off that he was just a late bloomer. When we decided that he wasn’t making any improvements, I went to his doctor to get help. I was starting to worry that it might be Autism, but the doctor passed it off pretty quickly and decided that the 1st Steps Program would be best for Bryce.
After incorporating 3, that’s right THREE, therapists into his weekly routine, we have now been told that we have a special needs child with a Sensory Processing Disorder. I have found myself crying about it many times since the realization that there is a name to what is wrong with him. As his mother, I want the best for my child. It’s been that way since the beginning. I didn’t have an ultrasound, I ate healthy (for the most part), his birth was completely natural, I didn’t vaccinate him (YES, I am one of THOSE mothers – the fact is, no one has proved that vaccines aren’t killing our children so we’ll deal with illnesses as they come) and I breast fed him until he was 22 months old. In my mind, there was no way that he could have something with the word “disorder” in it.
My heart has broken in many pieces since the day his therapist gave me the reading materials to understand why he does the things he does. I have struggled to create a structured day for him and it’s hard for me to do because I LOVE to live by the seat of my pants, the problem is that his disorder is Autistic-Like and NEEDS the structure or he’s a child with a violent temper. I feel like I can’t take him anywhere anymore and it’s really frustrating. He needs to be social and he needs to be around other people or he’ll never be okay with society.
We have seen some really great improvements lately, like he tried to say “ready” on Friday, but said “eh-eee”. He will bring me his bottle if he wants milk and his juice box if he wants juice. We are starting to be able to understand him a little bit more in what his sensory needs are, like he can’t handle a lot of noise in his environment and he needs deep pressure for his arms, leg, and back. It hasn’t been easy, but I am so blessed to have the opportunity to work with him full-time. He is the reason I get up early every morning instead of sleeping in when I want to, the reason my life has some kind of structure to it and the reason that I’ve started cooking healthier (when I can, of course).
Since this has been a life changing event for us, I decided to make a category just for Bryce’s updates because we have so many friends and family praying for him and encouraging us to stay strong for Bryce. I’m going to try to make it a weekly update, but blogging has been the last thing I get to with Bryce’s schedule.
































![The [b]school](http://farm5.static.flickr.com/4038/4270560702_021fbe64ce_o.png)